On November 8th, 2010 Lillian was born after a healthy planned C-section with no surprises but on December 6th at just six weeks old things rapidly changed and Lillian was diagnosed with biliary atresia.
On New Year’s Eve, doctors recommended the Kasaia procedure for Lillian, an operation to replace the damaged bile duct with a new drainage system made from a piece of the small intestine. It worked for awhile, but the 14 medications Lillian was taking daily were not helping and the doctors recommended a liver transplant from a living donor.
Lillian’s father’s was a match for her, but he had to embark on a 9 month routine to become healthier and lose weight to be able to donate part of his liver to his beloved daughter. During this 9-month period, Lillian was in horrible discomfort and as time went on, her spleen enlarged. Her health was up and down causing such distress for Lilian and her family.
Lillian was 14 months old when she received a portion of her Dad’s liver.
Unfortunately In the past 3 years Lillian has had 5 liver biopsies because she continues to experience bile duct problems. She may require another transplant in the near future. Lillian’s parents Arlene and Tony trust that the research the CLF funds could soon find the answers to avoid another transplant for their daughter.
The Bhathal Family – Caregiver, Living Liver Donor & Liver Recipient